The baby brother of Alfie Evans - who passed away last year after a long legal battle over his treatment - attended his first football match yesterday. Eight-month-old Thomas was seen smiling with his father, wearing a baby blue coat and woolly hat with pom-poms. And he got to meet the players and manager The pair watched as Phil Jagielka's first-half goal proved enough for Everton to take all three points.
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Baby Thomas and his father were applauded by 39, fans as Tom paraded before kick-off, according to the Mirror. Alfie had attended Goodison Park before he passed away, apparently enjoying his time at the ground.
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His father, an Everton fan, said Thomas has been tested and does not suffer from the same condition as Alfie. Tom was alfta dejting with the Chairman's Blueblood Award last year, an annual award given to individuals who Everton chairman Bill Kenwright believes 'embody the Evertonian spirit'.
Tom's partner Kate James, 21, became pregnant with Thomas during the legal battle for baby Alfie. The couple proudly showed off baby Thomas on This Morning last September - four months after Alfie died from a rare genetic disorder. They also revealed the condition which killed Alfie - a degenerative brain disease called GABA-transaminase deficiency.
Following Thomas' birth, Mr Evans and Ms James faced an 'agonising' four-day wait to see if their new son had the same condition, but fortunately his tests came back negative.
When I had him, I wondered "what if he does resemble Alfie", how will I feel.
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GABA-transaminase deficiency is a brain disease that alfta dejting in infancy. Alfta dejting of the disorder include seizures, uncontrolled limb movements, exaggerated reflexes, weak muscle tone, and excessive sleepiness. Children living with the condition do not usually live past two years of age.
Only ten cases have ever been documented, with five dying within the first two years and five young children still living with the condition, but still living with severe neurodevelopmental impairment. The disorder is genetic, and is passed down to offspring 25 per cent of the time when both parents carry the mutated gene. Tom, speaking with tears in his eyes, added: 'Sometimes you feel Alfie is in him.
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You'll say "Alfie" and Tom will smile. We will always have two children, no matter what. The parents' struggle to save Alfie gained widespread media attention after the couple fought to take him to Rome for emergency treatment. But Alfie died in April last year after a court ruled for his life support to be switched off.
Thomas was born in August last year, and his father has said the child has given him something to wake up for.
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I have to keep happy for Thomas's sake. I wouldn't want to wake up if it wasn't for the baby. The views expressed in the contents above are those of our users and do not necessarily reflect the views of MailOnline.
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